Many
patients touched our hearts with their stories this week, but we have to
mention Hau Huu Nguyen, a twelve-year-old boy who was born with a unilateral
cleft lip and palate.
I
spotted Hau sitting closely next to his mother in the front of the hospital
during screening, shyly staring at the hungry babies screaming in their
mothers’ laps and the excited children running around him. He wore a soiled
white and blue collared shirt, complete with a tiny blue tie and a small badge
with his school’s name printed on it. His stubby legs, clad in jeans covered
with colorful cartoons of superheroes, dangled over his chair, slowly tracing
shapes in the air beneath him. As I started to move closer to Hau, he quickly
tucked his lips in, concealing his scarred mouth from view. I tried to speak to
him, but Hau shoved his face in the crook of his mother’s arm, avoiding me
completely. I decided to talk to Hau’s mother, Ha, to collect the heartbreaking
details of her son’s story.
Hau
was always used to hiding his deformed face from others. Although Operation
Smile worked on Hau’s cleft lip twice before when he was very young, Hau’s lip
still wasn’t fully repaired from the surgeries because the scar on his upper
lip is still visible. At school, Hau’s peers tease him, mocking him with
hurtful comments because of a deformity that is totally out of his control.
Hau’s
unrepaired cleft palate also poses many difficulties for Hau. As an infant, Hau
had much trouble feeding. Ty always needed to grind Hau’s food into a milky
liquid in order for Hau to eat it. Hau also has severe speaking problems, a
reason why he neglected to respond when I tried to talk to him.
Ty
recently began to lose all hope for her son to finally become normal. As a rice
farmer, she is barely able to support her mentally challenged husband and three
sons with her measly earnings. Ty knew she would not be able to pay for the
surgery Hau needed with her negligible income.
When
someone told her that Operation Smile was coming to Nghe An, Ty felt that her
son would finally have the chance to live a normal life. Ty and Hau traveled 70
kilometers from their home in Thanh Chuong to make it to the hospital for
screening. As Hau went through the screening process, Ty said, “I am grateful
that we have come here. I hope my son will be able to have the surgery he needs
to look completely normal.”
Ty
was extremely excited to hear that our team accepted Hau for surgery. When
Hau’s surgery was completed, Ty was brought into the recovery room to see her
son. When Ty reached Hau’s bed, her face contorted in disbelief, unable to
believe what she was seeing. “This is not my son! This is not what he looks like!
Where is my son?” Ty exclaimed, looking for Hau in the other patients’ beds.
Even though the anesthesiologist tried to assure her that her son was lying in
the hospital bed before her, Ty persisted with her confusion, unable to realize
that the newly handsome face lying in front of her was Hau’s. Eventually, the
anesthesiologist gave up, showing Ty that Hau’s chart was attached to the bed
he lay in. Shocked, tears quickly began to run down Ty’s face as she thanked
the anesthesiologist over and over again for making her son normal.
Hau waits to enter the screening process. (Diana Amini) |
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